Pulmonary Valve Stenosis

We FINALLY made it to Primary Children's Hospital and just met with the Cardiologist and FINALLY found out what is going on with our little guy (well kind of found out, I'm not sure we totally understand). Kasey is exhausted and is sleeping, so I thought I'd share a bit of what has happened in the last 24 hours. Kasey delivered an 8 pounder at 4:47 pm yesterday afternoon. He was pretty fussy for a bit and we were thinking to ourselves, "sheesh Ady didn't cry this much the first day." We finally got him calmed down about the time the grandparents showed up. (Watching the Grandmas be forced to share him was somewhat comical). About midnight we asked the nurse if they could take him to the nursery since Kasey was exhausted and needed some sleep. When the nurses got him into the Nursery, which was much better lit than our room-since we were trying to rest, they noticed that his color wasn't right. So they ran some tests and found out that Brock wasn't getting enough oxygen. They sent him to NICU and we got called and woken up. I told the physician that called to do whatever tests were needed, and let us know. I assumed that meant in the morning they'd have some paperwork for us.

No. We got another call about an 90 minutes later asking us to come down to NICU. We'd never been woken up in the middle of the night and asked to come down to NICU. This was when the first real worry crept in. We got lead to NICU and we saw our little baby hooked up to these machines and had numerous hoses coming out of him. Worry was quickly replaced by all out fear. The nurses brought some chairs over and asked if they could get us a drink. We knew this was a bad sign, not only is getting someone something to drink and having them sit down a way to deliver bad news, I saw a sign on the way into NICU that said no food or drink. We knew that if they were offering us a drink and bending/breaking rules this was not a good sign. We were informed that something was wrong with Brock's heart, and that they wanted to life flight him to Primary Children's Hospital in Salt Lake. However, due to the snow storm they couldn't fly him, so they took him in an ambulance instead. We were told that something was wrong with a valve and surgery was needed, but weren't told much more. They told us that we had a few moments and allowed Kasey to hold him. We asked if we could pull the curtain and I gave him a blessing. 10 or 15 minutes later, at about 4 am they took him away.

We got to Primary Children's Hospital about 8 or 9 hours later after Kasey got discharged and we picked up some things that may be needed for a potentially longer hospital stay than we had planned. Those 8 or 9 hours seemed like forever. My mind kept racing around trying to think about what little I know about hearts realized that I know virtually nothing about human anatomy. When we got to Primary CHildren's we had a couple doctors, several nurses and a cardiologist come and visit with us. (Oh yeah, two social workers came by also). We were told that his condition is currently stable but he is in "severely critical condition". The cardiologist went on to explain that Brock's right pulmonary valve wasn't formed correctly and the heart isn't able to get enough blood to the lungs. He told us that we are fortunate and they believe that his condition can be surgically repaired. Somehow, I didn't feel at all "fortunate" hearing that our baby is in "severely critical condition".

The cardiologist must've been able to tell from the million and four questions that I asked, that I had no idea what a pulmonary valve is nor did I know what it does. He drew multiple pictures and labeled vents, chambers, and all sorts of things for me. I kept asking about long term scenarios and recovery time, and basically the answer to all of those questions is we have to wait till the surgery and see how it goes. They are talking about a minimum of one to two weeks for Brock to be hospitalized. (Hello maximum out of pocket for the insurance). They are hoping to not have to do open heart surgery, they plan on doing a cardiac catheterization. They are hoping to get him into surgery for Pulmonary Valve Stenosis tomorrow afternoon. That is about all we know at the moment. We appreciate all the support and prayers on our behalf and hope to soon be sharing a healthy Brock with all of you.